States / New York / S 6413

S 6413 In Committee

Relates to establishing a state amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) registry

Introduced
In Committee
Floor
Crossed Over
Passed
Enacted

Requires the department of health to establish a registry for the collection of information on the incidence and prevalence of amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) in the state; requires that every physician, nurse practitioner, physician assistant and general hospital that diagnoses or treats a patient diagnosed with ALS or MND give notice to the department of cases of ALS or MND coming under their care; requires that patients diagnosed with ALS or MND be provided with written and verbal notice regarding the collection of information and patient data on ALS and MND and provides a method for patients to opt out of the collection of data; provides for duties of the department and the commissioner of health in relation thereto.

Chamber
Senate
Introduced
Mar 13, 2025
Last action
Jun 10, 2025 — SUBSTITUTED BY A7845
Session
2025-2026
Momentum
30 · Low